But I sit here before you today with
these families to tell you, " I do count. I am not!" My family
loves me more than life itself. It devastates them still to
think of what happened to me. I had a perfect future ahead
of me. In high school, I was on an award winning dance team,
president of the German Honor Club, a contestant in the Miss
Ft. Walton Beach High School Pageant, a member of the National
Honor Society, Science Honor, and Alpha Tau Sigma, and voted
by the students as the smartest girl in the senior class.
I graduated fifth out of a class of 453. In my junior year
of high school, I was one of 80 North American students selected
for the Daimler-Benz Award of Excellence, receiving a month
long all-expense paid trip to Germany. The German ambassador
here in Washington, D-C- hosted a luncheon for the 80 recipients
and Daimler-Benz executives before we left for Germany. The
highlight of the trip for me, personally, was when the chairman
of Daimler- Benz Intemational read a quote from my essay as
he addressed our group.
When I contracted E. coli O157:H7, 1was
on full academic scholarship at the University of Alabama,
majoring in international finance with a minor in German.
Holding offices in the Women's Honors Program and AIESEC,
an international business organization, provided me with many
new and exciting challenges. My life was promising and I felt
invulnerable. Then something as simple as eating a hamburger
changed everything.
November 12, 1993, my brother, Joe who
also attends the University, and I went home for the weekend.
I began having flu-like symptoms. My mom told me to take some
cold medication, and I'd probably feel better by Monday. I
was awake all night Sunday. Monday moming I called my brother
to take me to the campus clinic where I was kept ovemight.
Tuesday I was seen by an enterologist at the hospital, who
sent me back to the campus clinic to spend another night,
in spite of the fact that the stool specimen I took to his
office was nothing more than blood. Wednesday moming my condition
had worsened. My parents were notified that I was being transferred
to a local hospital, and my mother left home immediately to
be with me. She expected to find me with a simple virus. She
was appalled when she arrived to find much worse. Pallor of
the skin, which accompanies E. coli was already evident. Vomiting,
diarrhea, and severe stomach cramps occurred every few minutes.
Injections of Demerol every four hours controlled the pain
for only a few minutes at a time. I began having unbearable
headaches - a condition which would reappear many times throughout
my illness. These headaches would sometimes last for days.
Many nights my parents took tums all night massaging my temples,
my neck, my shoulders and back, trying to make the pain more
bearable so that I could rest. Only occasionally were my parents
afforded the luxury of an uninterrupted nap on the small cots
in my cramped hospital room.
Wednesday night my enterologist informed
my mother that I had a bacterial infection which was strongly
suspected to be the strain of E. coli associated with the
outbreak on the West coast. Thursday night his suspicions
remained the same, but no cultures to confirm the diagnosis
were done, and the course of treatment had not changed. My
mother expressed her fears to him that I was dying and that
a diagnosis must be reached so that I could receive proper
treatment. A gynecologist, a hematologist, and a urologist
were summoned, and additional tests were made. By Friday night
the urologist suspected HUS/TIP. HUS or Hemolytic Uremic Syndrome
is the most prevalent cause of kidney failure in children.
There is a blurred distinction between HUS and TIP. TIP is
the adult version and often has the same symptoms but also
can include neurological damage. Saturday moming after a telephone
consultation with a hematologist at University Hospital in
Birmingham, a diagnosis of HUS/TIP was confirmed. Due to my
age, I was experiencing symptoms and complications of both.
Saturday was the day of the Alabama-Aubum
football game. As a happy, healthy college student my plans
for that day had certainly never included being transported
in an ambulance in heavy traffic at 85 MPH. During that ride,
there were times I could see my mom behind us and knew how
tense and upset she must be, having to follow a speeding ambulance,
still unsure of her daughter's fate.
From the minute we arrived at University
Hospital in Birmingham, my parents knew this was where I needed
to be. My attending physicians and the entire staff became
not only my caretakers, but also our family's friends. Within
two hours of my arrival the first of nineteen plasmapheresis
treatments was administered. This treatment is similar to
dialysis. Each treatment involved having the plasma removed
from my blood and being replaced with 16-20 bags of donors'
plasma. The treatments were horrendous. Sometimes I would
have nausea and vomiting throughout these four-hour ordeals.
At times I would be very, very cold. At other times there
was a painful tingling throughout my body as if an electric
current was running through it. Many times I was so adversely
affected by the pain, shivers, and nausea that the treatment
would be halted until I could bear to continue. However, we
could not wait lon-g-because my blood in the machine would
begin to clot.
The doctors informed my parents on November
20th that very little was known about TIP and its complications.
Treatments would be tried one at a time until I responded
to one of them - if I responded at all. If we were lucky and
I was cured, we would never really know which medication or
procedure was responsible.
My body continued to become more swollen
from fluid retention. Tuesday night after my 9:00pm medication
I became unresponsive for approximately five minutes then
appeared normal again. After my 2:00am medication I did not
respond to my parents or the staff. One side of my mouth was
drooping and it was feared that I might have neurological
damage. My thoughts were still somewhat dear at this time,
and I knew what I wanted to say to my parents. But when I
would try to speak, I could only count...21, 22, 23 - counting
faster and faster so that they could not understand many of
the numbers. I was combative, suffering from hallucinations,
and myoconic jerking, and had to be restrained. I was rushed
out for a CT scan which, amazingly, showed no neurological
damage.
My kidneys had completely shut down.
Later that moming, as I was being transferred to the Medical
Intensive Care Unit (MICU), I stopped breathing. Fortunately,
the nurses were able to revive me. My lungs had filled with
fluid, and I was placed on a ventilator to help me breathe.
Weeks of respiratory therapy followed.
Thanksgiving day, as other families
celebrated the holiday together, the nurses in MICU were kind
enough to break all of the rules and allowed my parents, my
brother, and seven other family members extended visiting
privileges even though I was comatose and unaware they were
there. My grandparents began their 200 mile joumey home Thanksgiving
evening believing they had seen me alive for the last time.
On November 26th 1 regained consciousness
after being nonresponsive for three days. My parents still
have the notes I wrote, in kindergarten like penmanship after
I regained consciousness. The first question I wrote, a typically
teenage one was, where are my rings? My class ring and birthstone
had been removed because of the severe swelling. As my kidneys
failed, I gained 30 pounds in less than a week. I was unaware
that I was on a respirator and my second question was, will
I ever be able to speak again? My throat was so sore that
I could not speak above a whisper for days after the ventilator
tube was removed.
I left MICU after four days and my health
actually improved for a few days. Just when we had renewed
hope that I was getting well, all of my blood functions started
crashing again. The platelets in my blood were still being
destroyed by the infection. A myriad of complications and
procedures followed, including more plasmapheresis and chemotherapy.
My platelets were being destroyed and those that remained
were not healthy.
My platelet count was so low that the
slightest touch to my skin created a new bruise. Petechiae
and ecchymoses, two separate forms of bleeding under the skin,
caused purple blotches all over my body. I also had deep purple
stretch marks from the rapid weight gain.
As my kidney functions improved the
fluid retention lessened, and I began to look more like myself.
Then came the anabolic steroids. The steroids caused more
puffiness and brought steroid acne to a formerly flawless
complexion. I also began to lose my hair as the result of
chemotherapy which had begun when I was in MICU.
I then underwent a very painful bone
marrow scan which provided no new information, nor did two
exploratory abdominal ultrasounds. For weeks as I would try
to read I was painfully aware that my thought process had
drastically slowed. I began to wonder if this condition would
last, and if it did what my future would be like. My blood
pressure was dangerously high, accompanied by frequent nosebleeds.
My headaches were especially bad during this time. Whole blood
and gamma globulin were administered on days when I was not
given plasma exchange. Still I did not improve. Nothing the
doctors had tried was working.
As a last resort, my team of doctors
decided to remove my spleen in an attempt to save my life.
We would not have been as optimistic about this procedure
had we known that three days before I arrived at University
Hospital a 26-year-old female had died from complications
of TIP. The splenectomy had made no difference in her case.
Luckily, after the splenectomy my platelet
count improved dramatically. I spent Christmas day sore, scarred,
bruised, weak, and losing hair, but relieved that I would
be able to leave the hospital in a few days. I was one of
the fortunate few TIP survivors.
On December 27th we tearfully said good-bye
to the staff and began our five-hour drive home. I continued
to suffer from anemia, high blood pressure, kidney problems,
and an uncomfortably strange tingling in my fingertips for
months. I still have stretch marks from the severe weight
gain and a scar on my stomach from the splenectomy. My hair
is still in the process of growing back. I have worn a baseball
cap for the past ten months and have just now been able to
go without one. The removal of my spleen has left my immune
system compromised. Now, as evidenced by my September 1994
hospitalization, a simple virus often requires special treatment.
I am much more susceptible to colds, viruses, and the flu.
Neither my doctors nor I know what my future will hold. Will
I have kidney problems high blood pressure, problems with
my reproductive system? No one knows.
Many of you probably have children close
to my age. When they go away to college, you worry about the
choices they will make: choosing to drink, smoke, have sex,
do drugs. Few of you will worry about your kids choosing to
go out for a burger. Your children will have no choice with
E. coli O157:H7. It will choose them. You, the United States
Congress has a choice to either protect the American people,
or turn your back on them and bow once again to the wealthy
meat industry 's selfish demands. The meat industry will tell
you they want a system to protect people, but it has not,
and will not, happened unless Congress takes action.
I am back in school and have resumed
a full academic and social schedule. However, I will be watching
what this Congress does with meat inspection reform this year.
America is going to be watching very carefully, because this
decision affects families on the most basic level of health
and safety. Safe food should be a given in any civilized society,
at least any society that I want to be a member of. This Congress
has a responsibility to do the right thing for the citizens.
It now has an opportunity to stop this kind of senseless human
suffering.
No one counted me, Laura Day. But I
will be counting, I will be counting very carefully what Congress
does about contaminated meat in America and the Family Food
Protection Act of 1995. E. coli O157:H7 tried to take my future
from me and failed. The many who have not survived their battle
with E. coli are represented by my voice and my vote to bring
reform and I, along with every family affected, will be counting.