| STATEMENT
OF DAN AND SALLY WITMER, PARENTS OF SARAH WITMER: Five
years ago, our 18 month old daughter
nearly died after a severe case of e. coli triggered a ravaging
blood disease, called Hemolytic Uremic Syndrome (HUS). At
that time, even though an Odwalla juice epidemic was in full
swing and highly publicized, E.R. doctors untrained in recognizing
e. coli in toddlers, turned us away twice from the Gilroy
emergency room. (Our pediatrician was out of town.) When
we realized, through desperate information gathering, that
our child had had Odwalla juice and was showing the symptoms
of severe food poisoning, we were still turned down by doctors
and told we were overreacting. It took four long days to
get help for our desperately sick child. We felt like third
world parents, unable to get help and watching our child,
vomiting and bloody, fading in our arms. At one point, after
a particularly bad vomiting episode, our toddler clung to
me and whispered in my ear, "Help me. Please help me."
Finally, on the fourth day, our pediatrician returned and
immediately had our child admitted. This very professional
and calm doctor's
words to us were: "She's shutting down. Get her to emergency
immediately. Oh my God. I'm so sorry." I raced with my
child, my four year old stumbling behind, across the parking
lot to the E.R. room, where I had to initially battle the same
E.R. doctor who had turned us away. It took the nursing staff
two hours to find a vein that didn't collapse, to rehydrate
our child's seriously dehydrated body.
We were transferred by ambulance to intensive care in a better equipped
hospital in San Jose where the staff was well-trained in fighting
e.coli and related problems. Our relief was short lived, however,
when we were told that while the e. coli had passed,the more
serious HUS had taken over and could not be stopped. The disease
had to run its course, and all the medical staff could do was
to try to intervene in its wake. The next two weeks were a
nightmare roller coaster ride of life threatening emergencies
and ICU interventions.
HUS destroys the red blood cells, causing mass bleeding throughout
the body. The platelets go crazy trying to mop up the bleeding,
causing damage themselves, by clogging the smaller vessels
in the body and by depleting themselves. In the average child,
there are somewhere between 200,000 and 400,000 platelets.
Sarah's were dropping daily. On the day we were warned that
Sarah's platelets had dropped below 30,000 we were scrambling
to find platelet donors. That night, Sarah's platelets had
dropped below 5,000 and crying nurses wheeled her out to
start emergency transfusions. Sarah survived this crisis
and overcame
several other life threatening emergencies. At one point,
after fighting a GI infection and a blood infection at the
same time,
wrapped up in an ice pack, covered in wires, Sarah again
whispered to me: "Baby crying. Baby broken". Thanks
to the prayers of many people and to the dedicated doctors
who were
willing to take risks with new methods Sarah survived and
is doing well today. But the images of our tiny toddler,
bleeding
all over the floor, whimpering in pain and confusion, will
never leave me. I can't imagine the images haunting those
who have lost a child.
We wouldn't wish the nightmare we endured on anyone, let alone
the much worse nightmares endured by others. Even for many
families who have been spared the tragedy of a loved one's
death, there are still the strong possibilities of kidney damage,
heart damage, brain damage, cortical blindness, etc. We have
gone to conferences to learn more about the disease and Sarah's
prognosis for the future, only to come away heartbroken, having
met large numbers of people whose child either died or was
severely maimed.
What is the most heartbreaking thing to us is that these children
should have been protected. We do not live in a third world
country, but in a country rich with resources and know?how.
How can it be that there aren't better rules for ensuring that
our food supply is not manure contaminated? It is truly shameful
that apathy, politics and financial greed keep adequate safety
measures from taking place. What needs to happen before the
government takes the simple, non-costly measures needed to
protect our most vulnerable citizens? These victims are beloved
individuals, not faceless statistics. These persons are not
expendable for a larger economic cause.
STATEMENT OF SARAH WITMER (AGE 7): My name is Sarah Witmer.
I've been wondering why people have been dying from eating
dirty food like hamburgers. Could you please try to find
some way to keep dirty meat from being sold. I still remember
being sick and in the hosiptal. It felt very awful and scary.
It gave me bad dreams for a long time. I know how people
feel who are in the hosiptal with e.coli. Please try to help
them. Thank you.
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