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I
wanted to share the story of my son's ongoing illness, I'm
not sure if it will help or not but for my own peace of mind
I would like others to know.
First
a little background. My name is Shannan and my husband is
Jeff, together we have 2 wonderful children. My daughter Taylor
is now 8 and my son Trace is now 4, we also have guardianship
of my 15 year old sister.
We moved
to Mississippi wanting to raise our kids in a better
place. We're from Houston and didn't want the kids growing
up in a fast paced lifestyle. Hubby and I fell in love with
a historic home and before we knew it he had quit his job
and we were living here in Mississippi. Life is good here.
We started a company and are able to work from the house,
we're enjoying every second of working on this old home, the
kids have land to run about on, trees to climb and clouds
to lay under and watch pass.
School
starts in early Aug out here so the beginning of Aug was very
hectic for us. My daughter was as usual easy with her clothes
shopping but of course we couldn't get so lucky with the teenager.
We had planned to spend the Friday before school shopping, we knew it would be an all day
ordeal. That was Aug. 8th 2003.
The morning
of Aug 8th we woke early, grabbed pop tarts and wentnt shopping, knowing what the day had in store for us
(if you've ever shopped with a 15yr old you know what I mean!).
As we expected she had to try on every outfit and everything
made her either look fat, made her butt look huge or made
her look like she had no rear at all... it was brutal. After
several hours of this we needed a break... and stopped for lunch.
We had
a nice lunch full of fun, jokes, laughter and even a few chunks
of food tossed across the table. After eating, again
the shopping continued and by the time we crawled back into
our home that night we were thoroughly exhausted. The kids
took their showers and we tucked them into bed as always.
Saturday
afternoon Trace started having diarrhea, at first we didn't
think very much of it... maybe a tummy bug, but no cause for
concern. It went on throughout the day and by nightfall was
becoming more frequent, he was also having cramps but again
we thought it was a bug. Trace spent the night in bed with
me, the usual place of privilege for the kids when they don't
feel well... staying up late with Mom watching cartoons and
snuggling always makes things better.
By Sunday
the diarrhea was still going and his cramping was getting
much worse, he had at this point become hard to wake (he was
wore out) and was having a hard time getting to the bathroom
in time. We moved a bed into the hallway in front of the bathroom
for him and started calling the nurses, around 1 that afternoon
he passed his first bloody stool.
My husband
was taking the bathroom shift when Trace passed the blood.
I rushed him to the ER, making record time!
While he was in the ER he had 2 more bloody bouts and even
with the scene I threw, the ER physician refused to do a stool sample
or even look in the toilet at what was being passed. The ER
nurse was concerned and got a container to get a stool sample,
as soon as the Doctor saw what he had done he sent him away and
basically told me I was over reacting and that Trace had a
gastrointestinal bacteria that would pass.
Mom instincts
told me not to leave but I thought maybe I was over reacting
after all... maybe this was a bug that would pass. I took
my son home and watched as the bloody diarrhea got worse,
the cramps were so bad my son was falling off the toilet leaving
the white bathroom looking like a murder scene. After a long
night of this I started calling the ER again at 4am trying
to get them to pull some strings with the pediatric physician
and have my son seen quickly... at 11am on Monday Aug 11th
we saw the pediatric physician taking a stool sample with
us. We had never seen this pediatric physician before, I thank
God everyday for this man... he took one look at the stool
sample and we were sent back over to the hospital for a barium
enema. The BE showed intussusception which is when one part
of the intestines telescopes into another part basically digesting
itself in the process, at that point surgery was the only
option. Being in a small town, I was not happy about the surgery
being done at this hospital and asked for my son to be transported
to a larger children's hospital. Sadly there was no time and
the emergency surgery took place there. Again I thank God
for our pediatric physician who stayed with my little boy
throughout, we also had a wonderful surgeon.
On our
3rd day post surgery, we were told the intussusception was
caused by Salmonella Typhi. We also were told that had he
been seen earlier surgery could've been avoided (the 2 surgeons
who told us this were not aware he had in fact been seen earlier).
My son spent his 4th birthday with a 4 inch surgery wound going
up his little tummy. The surgery took place on the first day
of school.
Trace
still has not recovered fully. He has problems controlling
his bowels and has been diagnosed with posy-infectious IBS
(Irritable Bowel Syndrome.) He also has headaches and seems
to get sick if someone even looks at him funny. Just this
morning he was back at the Dr.'s with a horrible headache,
cold symptoms and a small amount of blood being found on toilet
tissue. The Dr.'s have him on an anti-spasmodic trying to
help his stomach cramps but they're doing very little good
and they do nothing for the problems with bowel control. We
see the pediatric GI physician again next month for a check
up and hopefully he can tell me why my little boy who has
never had a sick day in his life now catches every cold and
virus around.
As
of today this is the up to date on what Salmonella Typhi
has done to my sweet little boy, it just doesn't seem to end.
(read
more victim's stories)
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