Transcripts
MS. GIRAND:
Thank you very
much. We will do a question and answer after
our next presentation.
I wanted to mention to you just
real briefly some of you returned questionnaires
to us and your badges now actually may have
little dots on them. And the little dots are
indicative of specific symptoms or sequelae that
you indicated that your children might have. So
you might be able to identify other families
that have similar sequelae.
The gastrointestinal sequelae are
yellow dots. The renal sequelae are green dots.
The red sequelae (sic) are immune system
problems. And the blue dots are learning
disabilities.
One moment and I will get this
presentation set up for Dr. Mauseth.
SPEAKER:
Could you go over the
colors again, please?
MS. GIRAND:
Sure, I would be
happy to do that again, too. Green is renal;
yellow is GI; blue is learning disabilities; and
red is immune system.
SPEAKER:
Thank you.
MS. GIRAND:
And I will go over
them again later.
I want to introduce Dr. Mauseth.
Dr. Mauseth came highly recommended to us not
only by Children's Hospital in Seattle but also
by patients. And so we are therefore doubly
thankful to having him here today. Please join
me in welcoming him.
DR. MAUSETH:
I'm not as
familiar with these new fangled instruments. I'm
pretty much computer illiterate. I'm delighted
to be here. Diabetes in HUS is frequently found
-- but my major concern is diagnosis
is not found as often as other things. It's
relatively rare in HUS, but it does present a
significant problem.
I would like to start out with
a picture of the pancreas, here.
