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MS. DONLEY:
Good morning to
all of you. It's -- it's great to see a
really large, wide-awake crowd at this time of
the morning on Saturday.
We are about to embark on a
really truly remarkable and historical event
today. And all of us at S.T.O.P are very proud
to have been able to facilitate its happening.
This is the first time ever
that top medical authorities world-wide on HUS
are sharing the latest information available on
the sequelae and long-term implications of this
disease with both their colleagues and with
actual victims and their families.
I would like to add a special
thank you to the doctors who have taken their
time out of their busy schedules to come here
today and, of course, our sponsors.
And I am hopeful that we all
walk away with a lot of very good information to
take home with us. But I would also like to
add a very special thanks to a truly remarkable
person, and that is Laurie Girand, this
conference's coordinator.
Without Laurie's intense,
enormous efforts and sacrifices this event would
not be happening today. Would you please join
me in a special round of applause for Laurie
Girand.
Let me begin by
saying that it is not by accident that S.T.O.P
chose to host this conference here in Seattle.
S.T.O.P's very origin was in the aftermath of
the West Coast Jack-in-the-Box E. coli 0157:H7
outbreak that killed four known children and
sickened over 700.
S.T.O.P was founded by grieving
families and their friends outraged that
hamburgers harbored deadly cattle feces and that
the government and the meat industry not only
knew about it but weren't doing anything about
it and that hundreds of illnesses and deaths
here in Seattle didn't have to happen because,
one, Food Maker, the parent company of Jack-in-the-Box,
failed to recall contaminated lots
shipped to Seattle and elsewhere. And two,
because the lack of public health infrastructure
that could have identified and linked the
illnesses and death that was occurring in the
San Diego area as the first signs of an epidemic
here.
Some of you are familiar with
S.T.O.P. and have been affiliated with us for a
long time. We have here today Donna Rosenbaum,
a founder of S.T.O.P. and S.T.O.P.'s first
executive director.
We also have Bonnie Rock, also
a founder, and S.T.O.P.'s first president. And
next to Bonnie is Roni Rudolph-Austin, a founder
of S.T.O.P. and the mother of Lauren Beth, whose
daughter was the first to die in the Jack-in-the-Box
0157 epidemic.
But some of you are not so
familiar with us, and I would like to take a
very brief moment to tell you a little bit about
us.
At S.T.O.P. we work hard to
provide victim assistance, public education on
the risks of food borne illness and how best to
minimize those risks and on policy advocacy
for stronger regulatory programs to make our food
supplies safer.
We began by focusing solely on
0157 contamination in meat, but as this pathogen
continues to spread its way through our food
supply, we have expanded our efforts to include
other food industries and other governmental
agencies as well.
And we've also needed to expand
our efforts to include Salmonella, Listeria,
Campylobacter as victims reach out to us and ask
for our help.
We've had our successes and
we've had our failures. In the meat and poultry
industry S.T.O.P. was instrumental in getting a
federal regulation passed calling for the pathogen
reduction hazard analysis and critical control
points.
For the first time ever
companies slaughtering meat and poultry must meet
microbial performance standards.
S.T.O.P. was also instrumental
in getting safe food handling labels on raw meat
and poultry products and in the USDA's
establishment of a zero tolerance standard for
E. coli 0157:H7 in ground beef.
S.T.O.P., largely through Laurie
Girand's efforts, has forced FDA to promulgate
juice safety regulations.
But we have to fight to
maintain every step forward because there are
constant efforts by some in industry and some in government
to roll us back to the way it was.
We invite all of you in this
room to join us in our efforts in the strongest
and best ways that you can. We appreciate
whatever support you can give us, both
financially and in personal involvement.
But now back to why we're
really here. Every one in this room has
experienced the horror, the brutality and the
trauma that the bacteria E. coli 0157:H7 can
wreak, in some way, shape, or form.
Some of us here barely escaped
death as we spiraled down into the hell into
Hemolytic Uremic Syndrome. Some of us provided
medical treatment to the victims, themselves.
Some of us suffered helplessly as we watched our
loved ones battling for his or her life, and
some of us witnessed the battle lost.
One of the greatest fears in
life is that of the unknown. Survivors of HUS
and their families live with this fear every
single day. I hope that today will provide
answers, and perhaps reassurance, and certainly
knowledge.
I would like to conclude with
the following message to you all, but most
especially to the families here today, speaking
as a mother who experienced Hemolytic Uremic
Syndrome vicariously through her little boy's
battle and his ultimate death. I would like to
share with you my own personal thoughts, wishes
and prayers.
Where there is life, there is
hope. Where there is hope, there is a future.
And where there is a future, anything is
possible. Thank you for being here today.
MS. GIRAND: Nancy, thank you
very much. I'm going to ask you to bear with
me while I demonstrate the technological advances
of this room. All right. Good, we're off to
a good start. Everything's working so far.
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